Planning Council for Health and Human Services, Inc.

Milwaukee County Long-Term Care Planning Project for adults with disabilities under the age of 60

 

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Frequently Asked Questions

Click here to view a printable version of the frequently asked questions (FAQs) on this page.

Milwaukee County held five Long-Term Care Reform Information Forums from September of 2007 through January 2008 at various Milwaukee County locations. These Forums provided an opportunity for people to hear about proposed changes in the long-term care service system for persons with disabilities between the ages of 18-59 and to ask questions about these changes.

Click here for an English version of the PowerPoint that was presented at the Forums. Click here for the Spanish version of the PowerPoint presentation. This presentation covers the following topics:

  • What is Long-Term Care Today.
  • The Milwaukee County Long-Term Care Reform Project.
  • Proposed Expansion of Family Care.
  • Family Care Goals / Expected Outcomes.
  • How Family Care Works / What Services Are Included.

Below are some of the more frequently asked questions (FAQs) raised at the Forums, along with answers.

Table of Contents for FAQs

Click on the heading or the individual questions that you would like to see answers for.

WHAT IS GOING TO CHANGE

  • Question: What is actually going to change for persons with disabilities between the ages of 18-59 in Milwaukee County, if Family Care is expanded?

FAMILY CARE SERVICES AND STRUCTURE

  • Question: Is Family Care a Health Maintenance Organization (HMO)?
  • Question: I am very satisfied with my current services. Would I be able to keep these services if Family Care is expanded?
  • Question: What services can be provided under Family Care?
  • Question: Is Transit Plus going to stay the same if Family Care is expanded?
  • Question: Does Family Care provide or pay for housing?
  • Question: Would the Care Management Organization (CMO) help me locate the services I need?
  • Question: Is self-directed care an option under Family Care?
  • Question: Would services for kids change?
  • Question: Would Family Care keep me from going to a nursing home?

FAMILY CARE FUNDING

  • Question: Would Family Care take the place of Title 19 / Medicaid?
  • Question: What is the maximum amount of dollars available for a Family Care member’s service plan?
  • Question: Where would the dollars come from to support the 2,500 people on the Disabilities Services Division (DSD) wait list? Would funding increase? If not, would quality decrease?

SERVICE PROVIDERS

  • Question: If Family Care is expanded and I choose to enroll, would I be able to keep my same providers?
  • Question: What happens if Family Care is expanded, but my current provider does not contract with the expanded Care Management Organization (CMO)? Would the expanded Family Care CMO pay providers that are outside of the established provider network?
  • Question: Would I be able to keep my care manager under Family Care?
  • Question: Would I be able to choose my own personal care nurse?
  • Question: How can I be sure that the people who would care for me are qualified?
  • Question: Would providers have the capacity to handle all the new clients if Family Care is expanded? Would new providers be needed?

ELIGIBILITY / ENROLLMENT

  • Question: Would I need to be eligible for Title 19 / Medicaid to qualify for the Family Care benefit?
  • Question: What if I am already on a Waiver program? Would I have to re-apply and be re-evaluated for Family Care?
  • Question: If I have Managed Care SSI and Medicare, does this automatically make me eligible for Family Care?
  • Question: Could you own your own home and still be eligible for Family Care?
  • Question: How long would I be entitled to services after I’ve been enrolled in Family Care?
  • Question: Can I still receive my Medicaid Waiver services until I turn age 60 or until Family Care is available?
  • Question: If Family Care is expanded, would I have the choice not to join?
  • Question: I never seem to be eligible for services, but I need help. Where can I go?
  • Question: How can I contact the Aging and Disabilities Resource Center (ADRC)?

START DATE

  • Question: When will Family Care become operational for adults with disabilities between the ages of 18 to 59 in Milwaukee County?
  • Question: What is the timetable for enrollment?
  • Question: How can I find out if I am on the Disabilities Services Division (DSD) wait list?

FREQUENTLY ASKED QUESTIONS

WHAT IS GOING TO CHANGE?

Question: What is actually going to change for persons with disabilities between the ages of 18-59 in Milwaukee County, if Family Care is expanded?

Answer: The following are some changes that you might notice if Family Care is expanded to adults with disabilities under age 60 in Milwaukee County:

  • Under Family Care, the Disability Services Division (DSD) wait list would be eliminated.
  • People who are eligible for long-term care services would not have to wait for necessary services.
  • People who are currently receiving services through DSD may notice improved choice about where to live and the kinds of services available to them.
  • Every Family Care member would be part of an Interdisciplinary Care Management Team (IDT), which would include at least three people – a social worker, a nurse, and the member. Having a nurse on the team may not be something consumers are used to under the current Waiver system. Family Care, however, tries to ensure that consumers have the best health possible by coordinating health care with long-term supports. With the help of the IDT, each member would create an individual service plan.
  • In Family Care, there are no across-the-board decisions about who gets what services. The focus is on individualized planning to meet each individual’s desired outcomes. i.e. what is important to that person. Some examples of Family Care outcomes are:
    • I decide where and with whom I live.
    • I make decisions regarding my supports and services.
    • I decide how I spend my day.
    • I have the best possible health.
    • I feel safe.
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FAMILY CARE SERVICES AND STRUCTURE

Question: Is Family Care a Health Maintenance Organization (HMO)?

Answer: Family Care is not a HMO. It is a “managed” long-term care program, which means that there are Care Management Organizations (CMOs) that manage and deliver each member’s Family Care “package.” Funding and services from a variety of existing programs would no longer be available. Instead, funds from these programs would be pooled into one flexible long-term care benefit.

Although Family Care is not a HMO, it is classified by the Center for Medicare and Medicaid Services (CMS) as a Pre-paid Inpatient Health Plan (PIHP). What that means, is that in many respects it is treated similarly to a HMO. Family Care is classified as a PIHP because nursing homes and ICF-MRs (Intermediate Care Facility for Mental Retardation) are included in the benefit package. As a PIHP, Family Care is subject to many of the same regulatory requirements that apply to HMOs and other managed care programs. Some of these requirements are very beneficial to members, such as: an Appeal and Grievance process, choice of providers and a self-directed supports option.

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Question: I am very satisfied with my current services. Would I be able to keep these services if Family Care is expanded?

Answer: The Family Care benefit package includes all the services in the current Medicaid Waiver programs (Community Integration Program [CIP], Community Options Program [COP] and Brain Injury Waiver [BIW]). Care Management Organizations (CMOs) may also provide additional services not in the Medicaid benefit package if they meet the member’s individual outcomes and are cost-effective. You would get the services you need at the level you need them to cost effectively meet your personal outcomes. They may or may not be the exact same services at the exact same level that you currently receive.

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Question: What services can be provided under Family Care?

Answer: The services that Family Care provides would depend upon the needs of the individual as determined by the Long-Term Care Functional Screen (LTCFS) and the Member-Centered Plan. The LTCFS is used to determine the level of care. For most members, the LTCFS assessment would find a nursing home level of care. That does not mean the person needs to be in a nursing home to receive services. It means that the person is eligible for Waiver services. The Family Care benefit for members at the nursing home level of care can provide the following long-term support services:

  • adaptive aids
  • adult day care
  • adult family home
  • certified Residential Care Apartment Complex (RCAC)
  • children’s foster care and treatment foster care (for people between the ages of 17 years nine months and 22)
  • communication aids/interpreter services
  • Community-Based Residential Facility (CBRF)
  • consumer education and training
  • counseling and therapeutic resources
  • daily living skills training; day services
  • financial management services
  • home delivered meals
  • home modifications
  • housing counseling
  • personal emergency response system services
  • prevocational services
  • relocation services
  • respite care
  • Self-Directed Services (SDS) support broker
  • skilled nursing services
  • specialized medical equipment and supplies
  • supported employment
  • supportive home care
  • transportation
  • vocational futures planning.

The following “card” services can also be provided in the Family Care benefit:

  • disposable medical supplies
  • durable medical equipment
  • home health
  • mental health and substance abuse services
  • occupational, physical and speech therapy
  • personal care
  • skilled nursing services
  • nursing facility services
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Question: Is Transit Plus going to stay the same if Family Care is expanded?

Answer: Transit Plus is a County service that may or may not change. If changes do occur, they would not be the result of the current Family Care expansion planning. Transportation is a covered Family Care benefit.

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Question: Does Family Care provide or pay for housing?

Answer: In Family Care, housing costs, including room and board or rent, continue to be paid by an individual’s own funds including SSI (Supplemental Security Income) or SSDI (Social Security Disability Insurance). Family Care is a Medicaid Waiver program and is limited to paying for services to support individuals in the community.

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Question: Would the Care Management Organization (CMO) help me locate the services I need?

Answer: Yes. The State requires that the social worker and nurse care managers (part of your Interdisciplinary Care Management Team or IDT) have knowledge of long-term support resources. With the help of your IDT, you would come up with an individual service plan that contains the services that are appropriate to meet your needs and personal outcomes. The plan must be clear about what services and supports you would receive to achieve your personal outcomes, who would provide you with each service or support and when each service or support would be provided. The plan would describe things you are going to do yourself or with help from family or friends.

The CMO must have a provider network with enough providers to meet the long-term care needs of the members. On enrollment, you would receive a directory of all of the service providers within the provider network. Once you and the rest of your IDT decide what services are necessary, you may select a provider from the network. If you’re not sure which provider you would like to select, your case manager can help you make that selection.

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Question: Is self-directed care an option under Family Care?

Answer: Yes. Self-directed support (SDS) is available to all Family Care members. SDS gives consumers the option of buying their services directly with their Care Management Organization (CMO) dollars instead of having the CMO buy them. Self-directing one’s services may offer consumers more control over their services and supports.

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Question: Would services for kids change?

Answer: If Family Care is expanded, all minor children, under 18, would continue to receive services through the children’s long-term support system, as long as they continue to remain eligible.

At age 18, young adults who are eligible for Family Care would no longer be eligible for children’s long-term support services because they would have the option to enroll in the Family Care program without delay. However, children who have a diagnosis of Severe Emotional Disturbance may continue to be served by the children’s Waiver until age 22.

At age 17 years 9 months, anyone may be screened for Family Care eligibility at the Aging and Disability Resource Center (ADRC). If eligible, they would be told what options are available to them and given the option to enroll.

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Question: Would Family Care keep me from going to a nursing home?

Answer: Family Care is designed to meet an individual’s long-term care needs, wherever they need them; therefore, a person could receive services in the community or in a nursing home. Family Care may prevent nursing home admissions to the extent that your needed services can be provided in an alternative living arrangement or in your own house or apartment and are cost effective.

The main purpose of Family Care is to help people receive services in the community whenever possible. Sometimes nursing home admission may be a good idea for a short time. Some people may need rehabilitation in a nursing home after an accident or an injury. The nice part about Family Care is that even if you do need this type of rehabilitation, you still have the IDT (Interdisciplinary Care Management Team). You and the rest of your IDT can work with the nursing home right from the start to get you back in the community as soon as possible.

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FAMILY CARE FUNDING

Question: Would Family Care take the place of Title 19 / Medicaid?

Answer: Family Care would take the place of part of Title 19 / Medicaid. Some services that Title 19 covered would be a part of your Family Care benefit. Some examples of this are home health services and therapy services. Some services, like your doctor, would still be covered by Title 19. Family Care combines or “pools” all the funding currently in the system for long-term care. This includes money that funds the current Medicaid Waiver programs: Community Integration Program (CIP), Community Options Program (COP), Brain Injury Waiver (BIW), and some Title 19 / Medicaid “card” services.

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Question: What is the maximum amount of dollars available for a Family Care member’s service plan?

Answer: There is no pre-established maximum dollar amount available for each member. Family Care - Care Management Organizations (CMOs) receive a monthly rate for each enrolled member. The CMO then pools all the funding received for its members and utilizes those dollars in the most cost effective manner to provide services to its members. Some people’s care plans may cost more than the rate and some may cost less. The goal is always to meet the individual care needs of each member while being mindful of overall program funding.

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Question: Where would the dollars come from to support the 2,500 people on the Disabilities Services Division (DSD) wait list? Would funding increase? If not, would quality decrease?

Answer: The State Legislature has approved a budgetary increase to support Family Care expansion in the current State biennial budget with approximately $80 million in newly appropriated funds. These funds are coming from several new revenue sources.

In addition, the State believes, and we agree, that by providing more community services and managing the care for more people, fewer people would need to use more costly services, like nursing homes or hospital emergency rooms. By helping people remain as healthy as possible, fewer people would rely on high cost services; therefore, more people could receive services. For Family Care to succeed, it will be important to make sure quality does not decrease. If quality decreases in the community services, we would not be able to decrease the use of high cost services, because people would not maintain the best possible health. It is expected that Family Care expansion would help improve the quality of services provided, by requiring CMOs to develop more sophisticated means of measuring quality and a more cost effective service delivery system.

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SERVICE PROVIDERS

Question: If Family Care is expanded and I choose to enroll, would I be able to keep my same providers?

Answer: This would depend on whether your current providers are currently in or able to join the Care Management Organization’s (CMO’s) provider network and could meet your individual outcomes in a cost-effective manner.

In practice, the Family Care CMOs have contracted with most of the providers that that were previously in Waiver programs. The number of providers available to members has actually grown in Family Care because the CMOs are required to have providers for all the covered services and offer a choice of providers. The Milwaukee County Department on Aging, which currently operates a CMO in Milwaukee County for adults age 60 and older, has over 700 providers in its network for their members to choose from. Many of these providers already provide services to persons age 18-59.

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Question: What happens if Family Care is expanded, but my current provider does not contract with the expanded Care Management Organization (CMO)? Would the expanded Family Care CMO pay providers that are outside of the established provider network?

Answer: Family Care members can request a provider who is not in the provider network and the CMO must consider the request. A member’s request for a provider outside the network should be honored by the CMO when current network providers:

  • do not have the capacity or specialized expertise to meet the need;
  • cannot meet the need on a timely basis;
  • or are located in geographic locations or buildings that make transportation or physical access an undue hardship to the member.
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Question: Would I be able to keep my care manager under Family Care?

Answer: Continuity of services is very important; however, there are no guarantees that you would have the same care manager under Family Care. Some staff changes may always be possible as care managers retire, move on, or transfer teams.

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Question: Would I be able to choose my own personal care nurse?

Answer: For providers who come into the home or provide hands-on care, such as personal care and supportive home care, the Care Management Organization (CMO) must purchase services from whomever you choose as long as that person meets the CMO’s requirements and accepts the CMO’s payment rate.

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Question: How can I be sure that the people who would care for me are qualified?

Answer: Family Care requires an extensive quality assurance program including a Best Practices Team. This team ensures that qualified staff provides quality care. The State Family Care Contract also requires that providers meet certain credentialing requirements, which are monitored by the CMO.

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Question: Would providers have the capacity to handle all the new clients if Family Care is expanded? Would new providers be needed?

Answer: The current provider network would expand, as needed, to meet the needs of an expanded population. The Milwaukee County Family Care CMO would continue to form partnerships with community-based agencies to help staff the program.

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ELIGIBILITY/ENROLLMENT

Question: Would I need to be eligible for Title 19 / Medicaid to qualify for the Family Care benefit?

Answer: Yes. You would need to be eligible for Title 19 / Medicaid to qualify for Family Care benefits. A financial and functional screen would be given to determine eligibility. To be eligible, one must meet both the functional and financial criteria.

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Question: What if I am already on a Waiver program? Would I have to re-apply and be re-evaluated for Family Care?

Answer: All those currently receiving Waiver services would be offered options counseling and would be evaluated to determine current functional and financial eligibility.

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Question: If I have Managed Care SSI and Medicare, does this automatically make me eligible for Family Care?

Answer: Eligibility for Family Care is determined by both financial and functional eligibility. Every member of Family Care must meet both a financial eligibility screening as well as a functional screen to determine appropriateness for Family Care. Managed Care SSI is not currently available to Family Care members and it is not possible to enroll in both programs simultaneously. Medicare eligibility does not affect Family Care eligibility.

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Question: Could you own your own home and still be eligible for Family Care?

Answer: Yes, you could own a home and still be eligible for Family Care. An Options Counselor from the Aging and Disability Resource Center (ADRC) would be able to help you decide if Family Care is appropriate for your needs. If Family Care is not appropriate for you, they could help you identify services that are.

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Question: How long would I be entitled to services after I’ve been enrolled in Family Care?

Answer: Once you are enrolled in the Family Care program, you are entitled to receive benefits as long as you meet the eligibility requirements. At least annually, a member must recertify to ensure they meet functional and financial eligibility requirements.

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Question: Can I still receive my Medicaid Waiver services until I turn age 60 or until Family Care is available?

Answer: Yes. You will continue to receive your Waiver services as long as you continue to be eligible for them. However, if Family Care expands to adults with disabilities under age 60 in Milwaukee County, the Waiver programs would no longer exist.

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Question: If Family Care is expanded, would I have the choice not to join?

Answer: Yes. Individuals could choose not to enroll in the Family Care program. An individual who opts out of Family Care may still be able to receive long-term care “card” services.

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Question: I never seem to be eligible for services, but I need help. Where can I go?

Answer: If Family Care is expanded to persons with disabilities aged 18 – 59 in Milwaukee County, the State will require the County to operate an Aging and Disabilities Resource Center (ADRC). ADRCs are places where the public can get accurate, unbiased information on all aspects of life related to living with a disability or aging. These centers are friendly, welcoming places anyone can contact to receive information and assistance regarding not only the public benefits that may be available, but all public and private programs available throughout the area. ADRC services can be provided at the ADRC, via telephone, or through a home visit - whichever is more convenient to the person seeking help.

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Question: How can I contact the Aging and Disabilities Resource Center (ADRC)?

Answer: The ADRC is not currently in operation; however, if you have question, you should contact the Disability Resource Center at (414) 289-6660 or the Aging Resource Center at (414) 289-6874. You can also try calling 2-1-1, which is a 24-hour phone service for Milwaukee County residents who need assistance with family, health and social services.

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START DATE

Question: When will Family Care become operational for adults with disabilities between the ages of 18 to 59 in Milwaukee County?

Answer: If Family Care is expanded, the target date to begin enrolling adults under age 60 is the first quarter of 2009. The State mandates that the wait list be eliminated two years after the program is implemented; therefore, if Family Care begins enrolling clients in 2009, the wait list should be eliminated by 2011.

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Question: What is the timetable for enrollment?

Answer: There are three groups of potential members for each new Family Care Care Management Organization (CMO). One group is the people currently receiving Medicaid Waiver services (CIP, COPW and BIW). This group would be enrolled during the first year that the new Family Care CMO is in operation, a few people each month. People on waiting lists are the second group of new Family Care members. They would be enrolled during the first two years the new Family Care CMO is in operation. The third group includes people who ask for long-term support services for the first time during the first two years the CMO is in operation. They would also be enrolled during the same two year period as people on waiting lists. People currently receiving services or on a waiting list would be personally notified when Family Care is available.

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Question: How can I find out if I am on the Disabilities Services Division (DSD) wait list?

Answer: You should contact the Disabilities Resource Center at (414) 289-6660 and ask if your name is on the DSD wait list. If you are not currently on the wait list, but want to be added, you should call the Disabilities Resource Center.

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Click here to view “Questions about Family Care for People with Developmental Disabilities: Responses to Questions from Consumers, Guardian and Families.” This information was put together by the Wisconsin Department of Health and Family Services.

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